Orphan medicinal products
Orphan medicinal products are medicinal products that are used for the diagnosis, prevention or treatment of rare diseases.
A disease is said to be rare if it affects no more than one person in 2,000. Access to orphan medicinal products is a right for patients in all European Union countries.
Rare diseases in Luxembourg
ALAN – Maladies rares Luxembourg is a non-profit association that was founded in 1998, and recognised as a public interest organisation in 2000. It provides support for people with rare diseases. Its main objective is to improve the quality of life of people with rare diseases and their loved ones.
ALAN – Maladies rares Luxembourg supports people with rare diseases: www.alan.lu.
Orphanet
'Orphanet' is an online platform that provides information on rare diseases and orphan medicinal products:
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